Halle has learned how to army crawl! Sort of sit up. She still loves crackers, and likes yogurt. So at least we have found something that works for her.
We checked her heart, and it is actually growing with her!! I was so excited. No surgeries yet. We graduated to seeing the cardiologist to once a year. Her blockage is now 13% just 6 months ago it was 25%. At birth it was a complete blockage! With surgery it should be 0% but they don't really worry about it if its under 20%. So cross your fingers she can defy medical odds again.
On another note, I have read some stories (which I shouldn't do!) on the Internet. That sometimes with all of the heart problems Halle has, which include coarctation of the aorta, bicuspid valve, and aortic stenosis, and finally a small hole in the left chamber. Which all of them can cause different things. We need her to get bigger, because if any of these problems get bad she will need open heart surgery to fix them, but if she is bigger most of the time they can balloon the closer. The bicuspid valve can get infections in them, and she can be fine then she will be very sick. Most likely fighting for her life again. As a mom I can't do that again. And I live in fear everyday. I just can't imagine her not here with us.
Now back to the story I read, there was a little girl, who had aortic stenosis . She actually had it bad enough were she needed a heart transplant when she was an infant. Well she's 4 now. She was on a trip with her family, on a make a wish foundation. She got sick and one thing lead to another, and her poor little body couldn't take anymore. My heart completely goes out to this family, they have already been through so much. I can't help to feel some sort of fear that Halle might have to go through something like this. I pray that she will be able to stay here with us. Being a mom is so hard, and so scary! But it is the most wonderful thing in the world.
