I'm not sure why things can change so fast, but they do. Her last echo showed some narrowing in her aorta again! This means there is future heart surgeries down the road. Hopefully not too soon. The repeated the echo a few days ago and have yet to hear results to see if she has to go back up to primary children's to have heart surgery now instead of waiting. I just don't understand how her heart can be going bad and her looking so good. My doctor here doesn't think she will need the surgery right away, which I'm so hoping not!
Miss Halle is nursing and has it down! She is able to nurse 2 times a shift and is doing great. I'm so grateful that this has come so natural to her (and me!) that something is actually easy!! The first few days of trying she would try but didn't really do anything. After that every time she would latch on she got better and better, now she is doing full feeds every time!
Halle is now 4 pounds and is sticking right around there, when you start nursing a preemie they can loose weight from the energy they are putting forth, and they are loosing out on the extra calories she was getting from the fortified breast milk she is tube fed. Which this is totally normal and she hasn't even lost that much. I think tonight she will start gaining again as last night she only lost 5 grams.
Halle seems like she will be a pretty content baby, really no crying coming from her! Ha what she does do is she likes to hold her breath when she's sick of being held or being messed with! So most likely she will be coming home on oxygen. Which sucks but at least I will have the monitors.
The kids got to come see her again, they were very excited! They love their baby Halle.
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